We have some answers

What a week last week was. We did finally get a some what answer as what is going on from Jodys drs. We also have a treatment plan now.
So this is what we have so far:
1) RSD
2) adhesion's
3) endometriosis
4) arthritis
5) fibromyalgia
6) PCOS
7 )copd


so what is the treatment? Right now she is taking


1) duloxetine
2)levisn
3)Lioresal
4)hylands restful leg
5) melatonin


Tomorrow  I have to pick up a new drug for her. Not for sure the name yet
Will update more tomorrow  when I know more

That word

That ugly word CANCER. Did you think about it? how you felt, how you treated someone else with it?  Let me first say Jody doesn't have cancer. I just want to get a point across though.
I will update on Jody's new diagnose in another post.


Cancer no cure. Well there's a lot other medical conditions out there besides cancer that causes death, spreads to other body parts, and that have no cure.


For 1 Endometriosis, did you know it can spread to your lungs, your arms, your legs. I am probable leaving out more but you get the point I am trying to make.


2:  RSD spreads through the whole body. Some have killed themselves due to not being able to take the pain no more . no cure for it either.


3: Fibromyalgia, no cure


4: Lupus no cure and can spread through the whole body.


5: Adhesions no cure and can attached to everything.


Just the 5 listed to can spread through the whole body and can kill you 1 way or another. So next time
you hear some say they have something read up about it, learn about it. Just cause its not cancer doesn't mean it doesn't act like cancer or there's not even a cure for it.


People who have stuff like I have listed are dealing with a lot of pain on a daily basis. Their lives are turned upside down. A lot cant even work anymore.
We have a close friend who is more like a sister to Jody then a friend, who has RSD and has had it for years. I am going to ask her if she would write about what she goes through everyday and what she has dealt with. So you can see its not just Jody dealing with some of these issues there are others out there too.
If you have questions ask, just cause you don't hear that word cancer doesn't mean these people aren't hurting or aren't really sick.

We are off to see the wizard

We are off to see the wizard the wonderful wizard  of rheumatology

A word for everyone

I will explain more this weekend but I want everyone to think about 1 word. That word is CANCER. Any kind of cancer. Just think about what you know about it from experience or from seeing someone dealing with it. How you feel when you found out you had it, how you felt when you learned someone else had it. What did you do or didnt do.
Please dont take more out of this then it is. I just want everyone to think for a minute about it.
Check in on Saturday as to why I asked you to think about it the word CANCER.

As good as it gets

I guess right now this is as good as it gets.  Jody was able to keep food down Friday but then Saturday she was sick again & in bed all day. Sunday she was able to keep food down so I say today she shouldn't be able to if it keeps up with this pattern. 
I hate this for her.  I wish I could do something.  She says her stomach hurts when she does eat & while shes eating. Hopefully we find something out on the 26th at the rheumatologist.

Er visit

Last night I had to take Jody to er. She was unable to keep anything down since friday which was not good at all.
The CT scan with contrast that was done on Wednesday was looked at again and shows nothing.
The drs are leaning towards everything is caused by the adhesions which is not good at all due to there is nothing to fix them.
The er was great with her last night. They gave her 2 bags of fluids & 3 kinds of meds to stop her from throwing up.
When we got home she went straight to sleep.
I will try to update more this weekend I have to head to work. Hope everyone has a great day.

Update

Saw GI dr yesterday he wants a ct scan with contrast done today & then a scope down her throat on the 9th of October.  In a way I am hoping they find something today. If they dont find anything it means its the adhesions causing all the problems. 
Jody hasnt been able to eat since Friday.  Every time she moves she is getting sick. She said her throat hurts from getting sick. I wish I knew what to do for her. O am lost right now.
Will update later tonight.

Not a good day

Jodys having bad day today. She cant keep nothing down. Hope it goes away soon or we will be at the er getting ivs

ARD