Will update

Sorry everyone i got busy but will update later on what is going on

Update

Hope everyone had a good thanksgiving. We cooked at home, its too risky with the time of year and everyone being sick for Jody to go out. She didn't eat. Its ok I ate enough for the both of us lol.
Since they uped her meds she hasnt been sleeping well. Half of the reason we figured out was the restless leg pills were reacting with the meds. Dont know why, the dr said it was ok to take them. So she has stopped the restless leg pills and is sleeping a little better.
As far as eating its still hit or miss. She does try to keep fluids down.
Work is crazy right now. We are doing leaf removal. We have had some rainy days but alot of nice weather lately. Hope the weather stays nice so I can keep working.
We are looking into getting testing done at different hospitals better than UT. We need answers as to whats going on with Jody.
Well hope everyone had a great weekend and be careful out there shopping and goinh to Christmas party's.

Been busy

Hello everyone.  First I would like to wish everyone a Happy Thanksgiving.
I am sorry I haven't updated in awhile. It is the time of year for leaf removal.  By time I get home I am exhausted.
As far as updates on Jody, her rheumatologist has uped some of her medications. 
She goes in on Monday December 1st for something called a swallow test. Not for sure what they are looking for.
Jody is still having trouble keeping food down. Wish they would figure this out already.  I am not for sure what if anything she will be able to eat tomorrow. 
We are staying at home for Thanksgiving & will be cooking a turkey & a couple other things. Just nothing to heavy or to big.
Jody & I hope everyone has a great Thanksgiving & remember be safe out on the roads.

Long week

Holidays are getting closer so is Jodys birthday. I know she is not looking forward to any of the holidays due to not being able to keep food down again this year. A couple years ago she was sick like this & watched everyone eat around her. I know it must suck.

Jody goes back to the drs on Thursday.  She has 2 appointments that day so hopefully they come up with a better plan then what they are doing right now.

She only goes to the drs & then back home due to the flu & colds going around. Its harder for her to get rid of a cold then the normal person. Plus it takes more out of her then a normal person.

Will up date on Thursday as soon as we get out of drs. Hope everyone has a good week.

Cold weather is here & we are not ready

Hi Everyone. Hope everyone had a great week. The weather is getting colder. Calling for snow here in Tennessee. We both moved down here to get away from the snow. For the 1s who don't know Jody lived in TN before me. We grew up 3hrs from each other in NY but never knew each other. We met here in Knoxville TN.


We are both so not ready for this cold. 1st it ups Jody's pain level a lot. 2nd out furnace still is not fixed all the way. Will cost to much $ to get it fixed and right now with medical bills & medications cost we don't have it. This is what I learned this year about furnace & heat pumps this year, We don't have heat pumps in NY so this is new to use. It takes Freon to run the heat pump, I didn't know that. So the Freon is out so to run furnace it has to be on emergency heat which it raises our electric bill a lot. Cant afford a high bill this year. 3rd still haven't had the $ to fix the heater core in truck yet. I will have to figure something out before Jodys next drs appointment. She will not be a happy camper with no heat in truck plus her pain level will go up real high.


Jody has been doing the same. Just waiting for the 13th of November to see what the drs have to say. The 1 pill she has been taking I can tell is working some. It doesn't take her depression away but has taken her mood swings away. I know that might have sound bad but it wasn't meant to. I love her no matter what. Just with everything going on with her body I think it messes with her hormones.


She is still having issues with keeping food down. Still no change at all there. Wish she could eat & keep it down. There is times she wont eat at all that day & night. Which makes me feel bad eating in front of her.


I go the 10th to the eye dr to get pressure in my eyes checked. I went without eye drops for my glaucoma for awhile due to not being able to afford them.
We had to go the er a couple weekends ago  due to my left side of my face (just the left side) from the top of my head down to my throat has been numb. Its really weird. Anyhow they did a ct scan due to the brain bleed I had during my car accident a couple years ago they were afraid it had come back. But it showed no bleed only the dead spot that's there now & no stroke. So that's good. They said it sounds like bell's palsy. It should go away after a couple weeks. Well it still hasn't gone away. It doesn't hurt just really bothers me. I don't dare to shave either as I am afraid I might cut myself due to it being numb.


Well I am getting off from here I have to get back to work. I hope everyone has a great Halloween & be safe out there.

Biopsies are back & we have some updates

The results of the biopsies are back & of course does not show anything.  I think Jodys weight gain is from the Polycystic ovary syndrome (PCOS). We will find out next month at the drs if they agree with us on the Endometriosis being back. But as far as her not being able to keep food in her I really think its because of the Adhesions disorder. Which as we have learned there is nothing they can do for it.  So that means this will be something she has to deal with the rest of her life. Which sucks.


 A friend suggested we keep a log of what she eats & how it affects her. Its just that  she can eat fish 1 time & it be ok but if she try's to eat it the next day it will come up or go straight through her. That's how it with all the food she eats. We think we find something that's going to stay in her but then it doesn't. So we will try to keep a log as far as what she eats to take to the dr maybe there's something we are missing.


We have been looking into starting a organization for Adhesion's Disorder or as a Chronic Pain to cover Adhesions, RSD & Fibromyalgia. To be able to get it started it will cost$600 for all the paperwork & filing everything. I am looking into how to raise the funds to do this. There is many others that can benefit from this. Even if its help paying for a medication that they need but cant afford, buying a heating blanket or pad to help them stay warm & ease some of the pain that they are having.  Or even sending a card or small gift to them to say hey you are not alone. I will keep everyone updated on what is going on with it as I get more into it.


I also want to share a GREAT Friend of ours who is the owner & also makes all the jewelry herself of Box of Pearls by Amanda has made a necklace for Adhesion Disorder Awareness. You can go here to purchase it Adhesion Disorder Awareness Necklace. It turned out great.  


 

Its cold here

Hi everyone. The weather is getting colder out. Which means mowing season is coming to a end. But I hope to be doing leaf removal and trimming bushes. I am looking for other work also due to pay will be going down. With all the medical bills we have to pay I need to work. We are still waiting for SSI to give us a answer. With just that extra income it would help a lot. So if anyone knows of any kind of work around here please let me know.


As far as update on Jody goes, nothing new to report. The cold weather is affecting her a lot, causing more pain. She spends a lot of time in bed due to the pain. The heating blanket I got for $50 off from craigslist was a great buy. She uses it a lot. I am not for sure who likes it more though her or the dogs lol.


We heard back about genetic testing. There is a 6 month wait plus before we can do it we would have to get copies of her 1/2 brothers results. So we will wait & see what happens.


Not for sure what to do. Jody eats & I know they say its supposed to take so much time to get to your stomach and intestines but as soon as Jody swallows its either the pain starts & it comes back up or she is running to the bathroom due to it coming out the other way. Food just doesn't want to stay in her. We have tried many different things & nothing seems to be working.


We have came to the conclusion also  that the endometriosis is back. Which is not a good thing. We have talked about having everything removed but due to more adhesions really don't want another surgery. We are both torn on what to do there right now.


Well I better get back to work so I can pay these bills. Hope everyone has a good week. If anyone has any ideals of stuff I could do from home or after my 1st job please let me know. Thanks