So I have tried writing this 3 times & every time I had to put it down but forgot to save it.
Lets see if I can get through it now lol.
Jodys been sleeping alot which in a way I think is good. Cause if you sleep your bodys not doing anything else. I know shes still in pain when shes sleeping though.
Where to start from where I left off. Last week Jody went for mammogram. Which out of all parts of UT Medical they have stuck alot of $ & time into the breast cancer part of hospital. They had drinks & snacks there. It was very comfortable. I wasn't able to go in the back with her but from her report it was really comfortable. When the nurse said she was going to get a gown, Jody thought it was going to be a hospital or paper gown. But nope they gave her a real nice rob to wear. Which I think would make woman feel better knowing that they care by doing that.
They went & did the 3d scan which from what I heard was pretty neat. But it still squashes your boobs. Lol Jody says a guy invented it. Then they went and did a ultrasound on her boobs just to make sure they haven't missed anything.
From what the dr said Jody has to go in for blood work to make sure some level isnt to high if it is they will have to do more test cause it means there's a blockage somewhere. But if not eveything that is going on with her boobs would be connected to whatever is going on with her that no one can figure out yet.
A couple of friends have suggested lyme disease & we did get blood drawn thats not it.
We went today for ultrasound which I was able to go back for. The girl who did it was very gentle with Jody. It was a transvaginal ultrasound or as Jody calls it a dildo with a condom & lube lol. The tech did a regular 1 first then the transvaginal 1. When it was time for the 2nd one I had to move my chair closer so I could hold her hand. I swear I thought she was going to break my hand. I know it hurt alot she was in tears.
We wont know the results til September 10th.
We have no appointments next week si at least we get a break.
I am going to write this weekend about how hard it is to have a love one that is in pain & you cant see it. We hear it all the time & so does a very close friend, people say well at least you look good or what do you mean you are sick? More people need to realize just cause you cant see it doesnt me they aren't sick. so watch for my post Saturday. Thanks for taking the time to read this.
Thursday, August 28, 2014
What a week
Thursday, August 21, 2014
Wednesday, August 20, 2014
What a day
Where do I start? Today has been more downs then ups. I already knew Jody was nervous. I cant lie I was too. This was a new dr but we wanted answers & thought ok today we will get at least a bit of the puzzle answered. That didn't happen.
All of her drs are at UT Medical. It makes it easy having everything right there. Plus the drs can share info through their web service. So no double tests done which is great.
We filled out the new patient forms & waited to be called. Now this was a obgyn
We have been waiting for this appointment for 3 months now. The er awhile back found a fibroid on her uterus plus she has had many cyst burst that has made her sick.
Since her last surgery in 2007 things have been alot worse. Not for sure if its cause of all the adhesions or does it have something also to do with the hole that is still open in her belly button.
Back to today. Jody was already nervous about being there. I have been by herside for almost every appointment since 2007. But I see a sign that says no one can go back with you. That didn't go over good at all. She was ready to walk out. When they called her name she went back & told me they weren't touching her without me in the room. First you have to understand this kind of checkup causes her alot more pain. She is already dealing with pain from it on a daily basis. So this just adds more.
She kept her phone on her so she could text me on what was going. The nurse was rude was first text I got. Then I was told that the nurse said when the dr exams you they dont allow anyone back. Well that set Jody off. She told the nurse she wasnt getting undressed or looked at without me back there.
Let me explain no I dont watch what the drs doing I stay by her head and hold her hand. When the pain starts getting really bad she squeezes my hand and crys. I am there for support.
The nurse tells her thats up to the dr but just sit there dont get undress then til the dr comes in.
It seemed like it took forever for the dr to come in. When my phone went silent I knew something was going on.
It wasn't a dr it was a nurse practitioner. Why not a dr? So guess what? Nope no exam just questions. And 2 more appointments. Jody has to go next week for a ultrasound then we have to wait til September 10th to see the surgeon.
Not for sure if this part is good or not but the last dr to do surgery on her over sees these drs in the operating room.
Oh and yes I will be in there when they do the ultrasound. I have seen the fibroid on the last one and the cyst so I know how big they were the last time. Plus there is no way Jody will allow nobody to be in there with here.
To end the day Jody is more depressed now then we started. She feels like all we are doing is getting bounced around from 1 dr to another dr. We go to 1 appointment and we get 2 more.
It is late but just wanted to update everyone will try to add more tomorrow so you can get the whole picture of whay we are going through.
Waiting
Sitting at UT Medical waiting for the dr. Jody is so nervous about this appointment. Update later
Tuesday, August 19, 2014
1st time blogging
I am doing this for a great loving, caring person. She has been my rock, been there by my side when I needed someone & didn't have anyone.
When we first met back in 2006 Jody had some medical problems. At the time she had RSD, endometriosis, adhesion disorder. She did not let them slow her down, she loved being busy. Jody would set up at Green Acres Flea Market on Sundays, watch kids during the week, go hiking, camping, loved to do crafts, help people with their taxes or legal issues & fix her own car(lol she didn't like anyone touching her car).
But the last couple years her health has gone down hill. We had no insurance, when she was real bad the er we would go. Boy them bills pile up fast.
At first it started with keeping food down. No matter what she ate it would not stay down. If it did go down it didn't stay down it came out the other end. We thought she was allergic to gluten, we changed the way we ate. At first things were going good, no more visits to the er every couple of days for Ivs.
It didn't last long. It started again & seems worse now then before. Just driving down the road she will get sick, she does take motion sickness pills on a daily bases but sometimes they don't work. I have gotten pretty good at washing that side of the truck lol.
Jody only eats every couple of days now. Its not good but I really cant blame her.
We have insurance now & have been going to at least 2 drs a week. Besides what we already know about the RSD, COPD, Endometriosis ,adhesion disorder. We have found out she has a fibroid on her uterus. Hopefully will know more tomorrow on this.
The drs are all thinking everything she has been going through lately is connected. So we have been bouncing around to different drs.
I hope someone can figure out what's going on this is crazy NO ONE should have to live like this.
Well that's it for me tonight. Jody has a drs. appointment in the morning Please PRAY we found something out.
Will update tomorrow night after I get off work. If you have any questions please ask thanks.
God Bless