Saturday, October 25, 2014

Biopsies are back & we have some updates

The results of the biopsies are back & of course does not show anything.  I think Jodys weight gain is from the Polycystic ovary syndrome (PCOS). We will find out next month at the drs if they agree with us on the Endometriosis being back. But as far as her not being able to keep food in her I really think its because of the Adhesions disorder. Which as we have learned there is nothing they can do for it.  So that means this will be something she has to deal with the rest of her life. Which sucks.


 A friend suggested we keep a log of what she eats & how it affects her. Its just that  she can eat fish 1 time & it be ok but if she try's to eat it the next day it will come up or go straight through her. That's how it with all the food she eats. We think we find something that's going to stay in her but then it doesn't. So we will try to keep a log as far as what she eats to take to the dr maybe there's something we are missing.


We have been looking into starting a organization for Adhesion's Disorder or as a Chronic Pain to cover Adhesions, RSD & Fibromyalgia. To be able to get it started it will cost$600 for all the paperwork & filing everything. I am looking into how to raise the funds to do this. There is many others that can benefit from this. Even if its help paying for a medication that they need but cant afford, buying a heating blanket or pad to help them stay warm & ease some of the pain that they are having.  Or even sending a card or small gift to them to say hey you are not alone. I will keep everyone updated on what is going on with it as I get more into it.


I also want to share a GREAT Friend of ours who is the owner & also makes all the jewelry herself of Box of Pearls by Amanda has made a necklace for Adhesion Disorder Awareness. You can go here to purchase it Adhesion Disorder Awareness Necklace. It turned out great.  


 

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