Monday, October 13, 2014

Where do we go from here?

Hi everyone, Sorry for late update. Its been a rainy weekend here which means no work for me and it also means more pain for Jody.
The scope Jody had done on Thursday showed nothing. We are waiting on 2 biopsy's  which will be back on Thursday this week. But Jody has been depressed more since. She just knew that's what they were going to say. We keep going in for answers but come out with nothing.
Jody does have 1/2 sisters &  1/2 brothers who have been having medical issues also. She is the only child from her parents 1st marriage so it does make it hard to figure out medical. She has 3 sisters from her fathers 2nd marriage & has 2 sisters & 3 brothers from her mothers 2nd marriage & a sister from her mothers live in boyfriend. So as you can see it makes it hard to figure out medical history. It does seem like she follows her father side more.


We have been in contact with UT Medical Genetic testing center. Jody's mother  suggested she contact Boston Medical where her 1/2 brother has had genetic testing done & has showed something but don't know what but its a rare thing. Sorry wish I knew more. But it is impossible for her to travel that far. So our hope is here with UT medical. Its where all of her drs are anyhow.


We have changed some things which seems to be working for now. I have tried in the past to get her to drink  ensure when she couldn't keep anything down but she didn't like the taste of them & wouldn't drink them. Lol it was like getting a child to try something new. I love her to death don't get me wrong but sometimes she is a handful lol.
I decided to buy her the special K drinks. Lots of different flavors & I hope they were better tasting then the Ensures.
It seems they are she does like them & they stay down better then food does. Which is great. But for how long will this work for? It seems when we find something that works it works for awhile then stops.
Jody has never been a big eater. From what I have heard when growing up she would rather eat vegetables then meat. When she was a baby she was allergic to milk which she still doesn't like to this day. She would also rather eat salads or vegetables today then meat.
We have gone gluten free a couple years ago. And yes I do sneak my doughnuts in when I am at work lol so she doesn't see. But we don't drink sodas, we don't fry anything, we hardly ever eat out & we don't buy junk food. We eat healthy.  I wanted to throw that in there due to some have said it could be the way we eat.
Well I hope the rain stays away this week. I need to work to be able to pay bills. This rain is making it hard to work and pay bills plus with all of Jodys medical appointments it is making it hard to work.
Just another thing I want to throw out there for the ones who doesn't live in TN. Here in TN there is no help for people that have no kids living in the household or if you don't have a certain kind of cancer. It sucks. When you help others but when you need the help the 1st thing people will ask do you have children in the home? No we don't but why should we be punished for not having children in the home?
Heres another thing we have found here in TN. Please don't get me wrong we love TN but it seems if you don't fall in certain categories you don't get help. Do you do drugs or drink? No we don't drink & we don't do drugs. So if we had kids living in the household, & did drugs the help would be pouring out of the woodworks.
Do you go to church? Yes we belong to a great church but due to the fact I have to work side jobs or make up hours I miss for appointments we just cant make it. Plus its that time of year where everyone is getting sick & with Jodys immune system down we cant take the risk of her catching something. We do miss going though.
Are you homeless? No we have a house now. But for a long time we had lived in a motel due to a accident I was in. We made it home yes but it was hard. Again when we needed help there we heard the same thing. Do you have kids living with you, do you do drugs or do you drink? Oh you don't have any the above sorry we cant help you.
And no it wasn't just social services that said this. It was churches, charities & others. 


So what am I getting at you might ask. Just because people don't do drugs, drink or have no kids in their household doesn't mean they don't need help.
I am a hard worker and try my best to pay our bills and do the right thing. But there are times where we sit here and think if we did do drugs we would get the help.
If you know of couples having a rough time help them. Even if its taking dinner by, a box of food or even buying a gift card to either a store, electric companies even have gift cards now.
We might be having a rough time but we still help people. We always have. We might have a $1 left but someone we know hasn't eaten we give them that $1.
We know many who have kids living in household, who does drugs & drink & live better then we do. There are also a lot that know how to lie to get what they want. That's not us. Just think people about the ones who are living the right way & trying to do all the right thing do need help also once in awhile.

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